Cases
Bone Marrow - NOTA Challenge
Flynn v. Holder
Challenge to the National Organ Transplant Act

 
 

Doreen Flynn, a single mother of five children from Lewiston, Maine, is a compelling example of the courage and determination parents must exhibit when their children are struck with a deadly blood disease.  Three of Doreen’s daughters have Fanconi anemia, a serious genetic disorder whose sufferers often need a bone marrow transplant in their teens.

   
   bonemarrowvideoplay.jpg
 

Client Video: Saving Lives: Challenging the Ban on Compensating Bone Marrow Donors

 

Video: Press Conference October 28, 2009

Every year, 1,000 Americans die because they cannot find a matching bone marrow donor.  Minorities are hit especially hard.  Common sense suggests that offering modest incentives to attract more bone marrow donors would be worth pursuing, but federal law makes that a felony punishable by up to five years in prison.

That is why on October 28, 2009, adults with deadly blood diseases, the parents of sick children, a California nonprofit and a world-renowned medical doctor who specializes in bone marrow research joined with the Institute for Justice to launch a legal fight against the U.S. Attorney General to put an end to a ban on offering compensation for bone marrow donors.  

The National Organ Transplant Act (NOTA) of 1984 treats compensation for marrow donors as though it were black-market organ sales.  Under NOTA, giving a college student a scholarship or a new homeowner a mortgage payment for donating marrow would land everyone—doctors, nurses, donors and patients—in federal prison for up to five years.

NOTA’s criminal ban violates equal protection because it arbitrarily treats renewable bone marrow like nonrenewable solid organs instead of like other renewable or inexhaustible cells—such as blood—for which compensated donation is legal.  That makes no sense because bone marrow, unlike organs such as kidneys, replenishes itself in just a few weeks after it is donated, leaving the donor whole once again.  The ban also violates substantive due process because it irrationally interferes with the right to participate in safe, accepted, lifesaving, and otherwise legal medical treatment.
    
The only thing the bone marrow provision of NOTA appears to accomplish is unnecessary deaths.  A victory in this case will not only give hope to thousands facing deadly diseases, but also reaffirm bedrock principles about constitutional protection for individual liberty.  This is the first time NOTA has ever been the subject of a constitutional challenge.


 


 

Essential Background

 

Photos and Videos

Backgrounder: Saving Lives:  Challenging the Federal Ban on Compensating Bone Marrow Donors

  Client Video: Saving Lives: Challenging the Ban on Compensating Bone Marrow Donors 
 

Photos: IJ Clients Doreen Flynn and Akiim DeShay 

  Podcast: IJ Senior Attorney Jeff Rowes Discusses the Case on Cato's Daily Podcast
Latest Release: Hearing in L.A.: Cancer Patients Seek to Remove Federal Criminal Ban On Compensating Bone Marrow Donors (March 10, 2010)   Photos: Case Launch
   

Launch Release: Cancer Patients Sue U.S. Attorney General in Bid to Save Lives (October 28, 2009)

 

Legal Briefs and Decisions

 

IJ Complaint filed October 26, 2009

 

 


 

Case Timeline

Filed Lawsuit: 


October 26, 2009

Court Filed:

 

U.S. District Court, Central District of California

Decision(s):

 

none available

 Current Court:   U.S. District Court, Central District of California

  Status:


Pending
  Next Key Date:  

TBD  

     

Additional Releases

 

Maps, Charts and Facts

none available

 

Bone Marrow Statistics

     
   

Op-eds, News Articles and Links

    Article: Saving Lives: IJ Challenges the Federal Ban on Compensating Bone Marrow Donors Liberty & Law (December 2009)
    Article: Markets in Everything: Bone Marrow The Atlantic October 28, 2009
    Article: Fighting the Federal Ban on Compensating Marrow Donors Reason Hit & Run October 28, 2009
    Article: Using Economics to Solve Bone Marrow Transplant Crisis US News & World Report October 28, 2009
    Op-ed: Compensation for marrow donors will save lives The Dallas Morning News October 27, 2009
     
 

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